Jane Wall's horn

The horn always sounded at the same times every weekday. At 8 a.m. and 3 p.m., the white passenger van would pull up across the street in front of Bill and Jane’s house and the driver would give a long blast on the horn.

After the horn sounded in the morning, the front door to Bill and Jane’s house would open and out would come Jane pushing her adult, wheelchair-bound daughter, Jane Wall, out to the street. The driver would carefully place Jane Wall in her wheelchair onto the motorized lift, and Jane would say goodbye, tenderly caressing Jane Wall’s face or shoulders. When the horn sounded in the afternoon, Jane – eternally smiling – would come out to welcome Jane Wall from a day at a center for physically and mentally disabled people.

Jane and Bill’s daughter contracted Reye’s Syndrome 30 years ago when she was about 3. A smiling, healthy and energetic child, Jane Wall’s condition left her with immense physical and mental disabilities. The easy way out would’ve been to simply institutionalize Jane Wall, and then Bill and Jane could sink their energy into raising their son.

But Jane and Bill are not cut from that cloth; there’s nothing in their makeup that would allow them to “give up” in such a fashion. I talked to Jane about that a number of years ago, and Jane simply replied, “Well, she was our baby. We couldn’t do that to her.”

So Bill and Jane raised Jane Wall with as much love, devotion and care as anyone. It was awe-inspiring when they would bring her to neighborhood parties, and everyone would be making a fuss over the brown-haired woman with the crooked smile. Jane Wall never said a word, simply looking at people and smiling. On occasion, she would laugh or show her displeasure, but she spent every night in her parents’ house, safe and secure from a world that too often seems cold and cruel.

Last week, Jane Wall contracted pneumonia. Delicate as a rare flower, Jane Wall put up a brave struggle for survival, but in the end she was called to a higher purpose. She departed Monday morning, surrounded by the family who loved her so much. What Jane and Bill may not know is how much of an inspiration they are to friends and neighbors; how their simple grace under pressure for three decades inspired generations fortunate enough to know them and love them.

Mornings and afternoons still will come each day in our neighborhood, but the missing sound of a horn from a white passenger van will signal a void in our lives. But if you open your heart and listen closely, you can hear the clarion call of heavenly horns heralding the arrival of Jane Wall.

Happy Valentine's Day, Kathy, Part 2

Last time, I wrote about the wonderful qualities of my wife, Kathy. Her joy of life and tenderness of spirit has brightened the lives of innumerable people, most notably myself, our son and our daughter. She often reads with our son, Robby, as part of his daily homework, but she’d want to do it regardless of whether it was an assignment. When she spends time with him, or any of us, her whole world seems brighter.

That innate ability to connect with people has served her so well in her profession: medical oncology. As the picture I have painted shows, Kathy is so much more than just a physician. But the branch of medicine she chose suits her gifts impeccably.

A few weeks after Kathy and I became engaged (after just two months of dating), a lunchtime question from a colleague came out of the blue. The question hung in the air for a moment as I pondered what my colleague asked: “How does Kathy stop from getting close to her patients?”

The question said something about how an outsider looking in sometimes doesn’t understand what good cancer doctors are really all about. They are not simply mechanics who provide necessary medicines then collect a fee. Oncologists also are cheerleaders, pathfinders, advocates, healers, handholders, psychologists and parents all rolled into one. Many is the time I’ve told Kathy, “I have no idea how you do what you do.” Good oncologists are a special breed. They can do their job perfectly – prescribe the right medicine, follow every step, make every diagnosis – and they can still “fail.” How many professions are there like that?

The answer I gave to my colleague’s question – “How does she stop from getting close to her patients?” – cut to the heart of who Kathy is as a person, and it was a simple answer: “She doesn’t,” I said. “She does get close to them. She shares their fears, their hopes, their sorrows, their joys. She has to. They have to know that she’s in the fight to stay.”

That’s why I fell in love with Kathy in the spring of 1998. Her heart radiates faith, love and hope. Her first instinct – to trust and empathize – is a remarkably refreshing approach, be it with family, friends, patients or strangers.

Kathy has asked me before how she has made a difference in my life. I’ve not been able to answer that because the question is so big. But I’d have to say that her faith in God has opened my eyes wider to all the wonders around us; her belief in the goodness of people has opened my heart; and her trust has allowed me to love as fully as I ever have.

Happy Valentine’s Day, Kathy

Happy Valentine's Day, Kathy, Part 1

We’ve started a new tradition in our house, and it was the brainchild of my wife. The three of us – myself, my wife, Kathy, and our son, Robby – hold hands and say a prayer at the beginning of each workday/school day. We ask God to bless us in our many tasks, asking that we keep in mind His word and His example to us through His son, Jesus.

Now, many Christians talk a good game when it comes to prayer, but in practice, well … let’s just say some are left wanting. I try to pray each night, but admittedly, I sometimes sign in but forget to sign out. We’ve been praying together each morning for a couple of months now and not only is it helpful, it really speaks to who my wife is as a Christian, a person and a woman.

If one’s approach to life is measured either with an arrow pointed up or an arrow pointed down, my wife’s arrow is most assuredly pointed up. Kathy always tries to find the positive in just about any situation, and more importantly, in just about any person. She constantly encourages our son to share his smile with others and find the right way to solve problems. I do not hear her speak ill of anyone; if someone has not treated her well, Kathy will say, “Well, maybe they were having a bad day.” She is quick to forgive.

Sometimes she takes the bright outlook to an interesting level: anytime we’re watching a football game and some pushing or shoving breaks out, Kathy says, “Guys, guys. Be nice to each other.”

Kathy loves to laugh. Many a time we’ve been in a movie theater, and she bursts out laughing at a particularly funny scene. She surprises herself when she does this, because she’ll cover her mouth thinking it’s too loud. I just smile when she does that.

Kathy also is moved easily to tears. A dear friend of mine once said of herself, “Oh, I cry at supermarket openings.” That’s Kathy, too. If something moves her, she’ll tear up, be it a passage from a book, some personal encounter or a movie. It’s one of her most endearing qualities. “Don’t ever change,” I say to her.

It’s her zest for life that makes her so special and what drew me to her 12 years ago. I was introduced to Kathy as I was rebuilding my life after my first wife passed away. It was a very rough year, trying to balance the needs of – first – my grade-school daughter, then a house, my career and working through the process of mourning and grief. By the time I met Kathy, I had steadied the ship, but its heading was uncertain. Enter a 36-year-old whose energetic way, tender heart and devotion to God got me back on course.

After being introduced, Kathy and I had our first date in February 1998. It was a remarkable evening. Neither of us was nervous because we talked for two hours BEFORE we went to dinner. She made me feel so at ease, so comfortable. It was her giving nature that first drew me to her, that and her dynamite smile, an amazing combination of warmth and enamel!

After dinner, she invited me in for coffee. I immediately accepted, even though I was not a coffee drinker. A chance to spend a few more minutes with her was perfect. We said our good-byes a short time later, and as I walked down the steps, I felt something I hadn’t in such a long time. I looked back at her, went back up the steps and kissed her good night again. I then realized that my heart, closed off for months, was actually beating again.

Up next: Part 2

Happy birthday, Elaine

February 1, 1958 does not occupy a particularly significant spot in history. On that date Egypt and Syria merged into the United Arab Republic (it lasted only three years), and the U.S. satellite Explorer 1 was launched.

But it was on that date at a hospital in Greenwood, S.C., that a 37-year-old mother of two gave birth to her first daughter. For the next 14,143 days, this infant/toddler/girl/woman brought light to all the lives she touched. Her name was Elaine Russell.

She grew up in the little mill village of Ware Shoals, S.C., lovingly attended to by her mother, Rachel, and her father, William Delbert Russell. She was also loved – as much as siblings can love – by her two older brothers and, later, a kid sister.

What she brought to this world was a mix of compassion, tolerance, faith in God, intelligence, humor and love that drew you to her. People congregated toward Elaine because once she was your friend, that was it: you were her friend for life. She didn’t pit people against each other; rather, she brought people together, making them feel welcome no matter the circumstance. Many a time people would be visiting and announce that they’d have to leave, only to have Elaine say, “Oh, stay on a while.” Those invitations were sincere.

Elaine fell in love when she was 27, and married a fellow newspaper person when she was 28. If there is such a thing as “marrying up” in life, then her husband surely did that. It was she who brought joy and richness to their union, lifting a man who had been lonely and searching for that one, special someone for a long time. They were in love and devoted to each other, a true doubleheader of life.

Life continued to bless them with their daughter, Rachel, less than three years after they married. Elaine’s daughter was the light of her life, and Elaine was the center of Rachel’s existence. They loved reading together, playing games, entertaining friends and simply being with each other.

Elaine found time to become a free-lance writer, get involved with their church and become a Brownie troop leader.

But this is no fairy tale; it’s a study in the human condition. Humans are, in the final analysis, frail creatures, subject to the randomness and vagaries of life. A pulmonary disease descended with terrible swiftness and claimed this woman on Oct. 30, 1996.

But even as her body betrayed her, Elaine’s mind and spirit wouldn’t succumb to self pity. Her husband found this short essay about a month after she died, written in one of the notebooks she kept.

"Why me?
Why can't I breathe well? Why I am virtually housebound hooked to an oxygen machine? Why have I had three major illnesses in my lifetime when some people breeze through the years without setting foot in a hospital?
Believe it or not, these are questions I have NOT asked myself as I've struggled with my most recent bout with sickness.
A more appropriate question might be 'Why not me?'
In times of frustration, despair or indecision, it's easy to look to the heavens and ask God 'Why me?'
But if I ask that question in troubled times, shouldn't I ask it when things are their sunniest, when life is easy, when everything is going my way?
Why was I born into a wonderful, caring family when so many children are unwanted and unloved?
Why have I been blessed with many friends in many places over the years?
Why did a find a wonderful man to marry and, with him, have a beautiful daughter?
Why do I live in a comfortable home and have plenty to eat while the world is filled with homeless and hungry people?
Why me? What have I ever done to deserve even one of the blessings I've known?"

That last question is one asked by all who knew Elaine Russell in the 38 years, 8 months and 29 days she was with us. None of us deserve the blessings we receive, but maybe we can ask for the wisdom to acknowledge them.

So today, 52 years after she was born, we acknowledge the blessing that was Elaine Russell. Happy birthday, Elaine.

Full Reversal, Part 4

This vulnerable man I write of was, obviously, not always this way. Quite the contrary, Dad was on the other end of the spectrum when I was growing up and even into my college years.

We were raised in an Epsicopal household. That is, my mother took us to church on Sundays. We also would have an advent wreath that we would gather around at Christmastime. But that was about it. I remember seeing my father in worship when I was little, but after we moved a couple of times, the memories of my father being in a church were almost non-existent. Also never brought up with Dad were conversations dealing with Jesus, God or faith. My father’s spirit was so lost that he got up right after I had been confirmed, choosing to leave the sanctuary before the rest of the service concluded. My father viewed most people who went to church as “pagan.”

But then Mom died of lung cancer in the spring of 1979. It was a crushing blow to our family, and it nearly killed my then 54-year-old father. He shook his fists in anger at God and swore he’d show Him a thing or two. Well, guess who won that smackdown?

Slightly more than a year after Mom died, Dad met Sally, a divorcee who was devout in her faith in Jesus and active in her Southern Baptist congregation in Memphis. It was through her example of strong faith that God opened my father’s eyes. I recently told Sally that, with God’s help, she had saved Dad, just as if she had pulled him from a burning house or a raging sea. “Really?” she said. “Oh yes,” I told her. He would’ve been dead a long time ago, consumed by all the bitterness and anger he had inside.

I still remember Dad calling me at my first job out of college to say he had started going to church and truly believed in Jesus’ life, ministry, resurrection and promise. I pulled the phone away from my ear, looked at it and thought, “OK, where is my father and what have you done with him?”

To think that Dad could come to believe, truly believe, in God, Jesus and the promise of salvation is, well, humbling. As Jesus told the no-longer-possessed man, “Return home and tell how much God has done for you.” As my father joyfully says today, God did much for Dad, and his spirit was transformed through God’s grace.

As my family enters this new phase with Dad, all of us pray that God’s grace will see us through. I know many people are praying for him, and all of us are grateful for that. But praying is as much for the person asking for God’s help as it is for whom the help is sought. Be mindful that God truly does answer prayers, but the outcome is not always the answer we think it should be. Whenever I pray, I always ask, finally, that whatever the outcome, please help me find the strength to deal with the final result.

Full Reversal, Part 3

One of my Dad’s characteristics when we were growing up was his emotional distance. Sure, we’d see him laugh and, oh boy, get annoyed or angry. But the first time I saw my father cry was when I was 21, and he told us that Mom’s lung cancer surgery did not go well. I remember how shocked I was that he was even capable of crying. He always seemed to have those spigots disconnected. Maybe he didn’t have tear ducts, I thought, thinking he was impossible to read.

Now, more than 30 years later, staying in that assisted living/nursing home facility, my Dad is an open book.

My first full day there with him, I saw my father cry more than in the previous 52 years of my life. Dad cried when my step-sister and I finally got him to realize he didn’t have to have a job. Dad cried when he talked to my brother. Dad cried when Sally and another step-sister, Sara, came to see him.

Dad confessed that when he saw his father cry a lot near the end of his life, he didn’t think much of it. “I thought it was so weak,” Dad said. “No, Dad,” I said. “It’s a sign of strength that you can let your emotions go. You have to let 'em go.”

The letting go was important because it showed everyone a side of him they doubt existed. Before she left for home, my sister Barb had told him, “You’ve been like a pineapple. All prickly and rough on the outside, but real sweet on the inside.” I kept driving home the importance of people seeing that sweet side a lot more than the prickly side. Anne and Sara both said they had never seen this tender side of him. “He’s like a lost little boy,” said Sara with tears in her eyes.

I think it goes back to my father’s childhood. He grew up in rural Arkansas during the Great Depression and had two parents who were not the warmest people in the world. His father – 44 when Dad was born – lost, then gained back, all he had three times in his life. His mother was a school teacher and principal who didn’t show him a lot of affection. Dad was shipped off to a school in Memphis when he was 13 by parents who wanted to give him a good education, but forgot about the emotional needs of an adolescent. Consequently, Dad formed an emotional wall around himself, rarely letting anyone in. Of course my mother, then Sally were able to scale that wall, and while he didn’t show it a lot, my siblings and I knew we were allowed inside the wall, too. But no one was inside the wall all the time; not us, not Mom and not Sally.

Now with the walls down, Dad is vulnerable to all that surrounds him. Like Sara said, he truly is like a lost little boy, one who needs his parents. Those parents are younger than he is, but they love him dearly and will help guide him through uncharted waters.

Full Reversal, Part 2

Big sister Barb had greeted me as I walked into the assisted living/nursing home facility. She had been there nearly a week already, watching Dad slip between lucidity and la-la land. It had taken a toll on her. “It’s just so hard,” she had confessed. “I’m worn out.”

Part of the problem was CAT scans had revealed that Dad had had a series of mini-strokes over the last several years. Taken individually, these strokes were barely noticeable, easily dismissed as the effects of aging on a man in his 80s. But cumulatively, they had sapped Dad of physical and emotional energy and dulled his sharp mind.

Add that to his episode of dizziness and nausea nearly two weeks earlier, and the result is an 84-year-old man getting up in the middle of the night, wandering the hospital halls in his birthday suit, trying to tell the nurses that people were stealing things from the hospital and putting them in their cars; or that he was seeing whales swim by his bed; or that he was in Minneapolis, when actually he was in Nashville.

Still, he had improved enough in those first few days to be transferred from the hospital to the assisted living/nursing home facility. After seeing Dad in his room, Barb and I took him outside to enjoy the beautiful autumn afternoon in middle Tennessee. Dad’s conversation with us was clear and funny as we reminisced about the past.

But then he looked at me and said, in a very serious tone, “Mark, I’ve got to find a new job. I lost my job last week, and I need to find work.” Dad had retired 15 years ago, but he was worried about his dear wife, Sally, having to sleep on the street.

My sister and I exchanged glances as if to say, “Here we go again.” We let him ramble for a while, then changed the subject. It’s odd how a past anxiety can mix with current stress and uncertainty to produce a very real, but ungrounded, fear.

That anxiety crept up again the next day, when my step-sister, Anne, was visiting. God bless her because Anne listened to that for a minute, then told Dad, “You’re going down one of those little bunny trails again.” It was a perfect response, and I followed that by telling Dad that he had been retired for quite a while, and he had a nice home and plenty of money.

“But what about that house in Little Rock that has all that furniture? We need to get that out of there,” Dad said. Anne and I patiently explained to him that he didn’t have a house in Little Rock, that he and Sally had moved from another city in Arkansas six years ago. Any extra furniture had been sold, so everything was fine. “Really?” he said. “Sure enough,” I answered.

Once again, the children became the parents and the parent the child.